2013
Schook, Romane M.; Linssen, Cilia; Festen, Jan; Schramel, Franz M. N. H.; Lammers, Ernst; Zaanen, Peter; Postmus, Pieter E.
Website Visitors Asking Questions Online to Lung Cancer Specialists: What Do They Want To Know? Tijdschriftartikel
In: INTERACTIVE JOURNAL OF MEDICAL RESEARCH, vol. 2, nr. 2, pp. 63-72, 2013, ISSN: 1929-073X.
Abstract | Links | BibTeX | Tags: Internet; lung neoplasms; medical informatics; information services; patient education; information needs; caregivers
@article{WOS:000218915500006,
title = {Website Visitors Asking Questions Online to Lung Cancer Specialists:
What Do They Want To Know?},
author = {Romane M. Schook and Cilia Linssen and Jan Festen and Franz M. N. H. Schramel and Ernst Lammers and Peter Zaanen and Pieter E. Postmus},
doi = {10.2196/ijmr.1749},
issn = {1929-073X},
year = {2013},
date = {2013-07-01},
journal = {INTERACTIVE JOURNAL OF MEDICAL RESEARCH},
volume = {2},
number = {2},
pages = {63-72},
publisher = {JMIR PUBLICATIONS, INC},
address = {59 WINNERS CIRCLE, TORONTO, ON M4L 3Y7, CANADA},
abstract = {Background: In 2003 the Dutch Lung Cancer Information Centre (Longkanker
Informatie Centrum) launched a website containing information on lung
cancer accessible to anyone.
Objective: Our study aim was to inventorize the information needs of the
visitors of this website by analyzing the questions they asked the lung
cancer specialists in the websites interactive section ``Ask the
Physician''.
Methods: The first 2000 questions posted up until May 2006 have been
classified by visitors' wish, type of required information, identity,
gender, and phase during treatment course.
Results: Our results show that 1893 (1158/1893, 61%) of the questions
were asked by a loved one/caregiver and (239/1893 13%) by patients. 1
out of 3 questions was asked by a daughter/grand-daughter. Most
questions concerned specific information on lung cancer and lung cancer
course (817/1893, 43%). The most inquired specific information topics
were therapy side effects, diagnostics, general information on lung
cancer, and regular therapy. Furthermore, questioners wanted to verify
their own doctor's information (122/1893, 6%), a diagnosis (267/1893,
14%), and a prognosis (204/1893, 11%).
Conclusions: Lung cancer patients and their caregivers asked the most
questions in the interactive website section. The most frequently
requested information was more detailed information. These include
specific information on lung cancer (regular therapy, diagnostics, and
disease symptoms), verification of what the doctor has said, diagnosis,
and prognosis. Most of the requested information could have been
obtained from treating specialists, indicating that current information
supply to lung cancer patients and their caregivers may not be matching
their needs sufficiently. The further implementation of an online
dialogue with lung cancer specialists might be a solution.},
keywords = {Internet; lung neoplasms; medical informatics; information services; patient education; information needs; caregivers},
pubstate = {published},
tppubtype = {article}
}
Background: In 2003 the Dutch Lung Cancer Information Centre (Longkanker
Informatie Centrum) launched a website containing information on lung
cancer accessible to anyone.
Objective: Our study aim was to inventorize the information needs of the
visitors of this website by analyzing the questions they asked the lung
cancer specialists in the websites interactive section ``Ask the
Physician''.
Methods: The first 2000 questions posted up until May 2006 have been
classified by visitors' wish, type of required information, identity,
gender, and phase during treatment course.
Results: Our results show that 1893 (1158/1893, 61%) of the questions
were asked by a loved one/caregiver and (239/1893 13%) by patients. 1
out of 3 questions was asked by a daughter/grand-daughter. Most
questions concerned specific information on lung cancer and lung cancer
course (817/1893, 43%). The most inquired specific information topics
were therapy side effects, diagnostics, general information on lung
cancer, and regular therapy. Furthermore, questioners wanted to verify
their own doctor's information (122/1893, 6%), a diagnosis (267/1893,
14%), and a prognosis (204/1893, 11%).
Conclusions: Lung cancer patients and their caregivers asked the most
questions in the interactive website section. The most frequently
requested information was more detailed information. These include
specific information on lung cancer (regular therapy, diagnostics, and
disease symptoms), verification of what the doctor has said, diagnosis,
and prognosis. Most of the requested information could have been
obtained from treating specialists, indicating that current information
supply to lung cancer patients and their caregivers may not be matching
their needs sufficiently. The further implementation of an online
dialogue with lung cancer specialists might be a solution.
Informatie Centrum) launched a website containing information on lung
cancer accessible to anyone.
Objective: Our study aim was to inventorize the information needs of the
visitors of this website by analyzing the questions they asked the lung
cancer specialists in the websites interactive section ``Ask the
Physician''.
Methods: The first 2000 questions posted up until May 2006 have been
classified by visitors' wish, type of required information, identity,
gender, and phase during treatment course.
Results: Our results show that 1893 (1158/1893, 61%) of the questions
were asked by a loved one/caregiver and (239/1893 13%) by patients. 1
out of 3 questions was asked by a daughter/grand-daughter. Most
questions concerned specific information on lung cancer and lung cancer
course (817/1893, 43%). The most inquired specific information topics
were therapy side effects, diagnostics, general information on lung
cancer, and regular therapy. Furthermore, questioners wanted to verify
their own doctor's information (122/1893, 6%), a diagnosis (267/1893,
14%), and a prognosis (204/1893, 11%).
Conclusions: Lung cancer patients and their caregivers asked the most
questions in the interactive website section. The most frequently
requested information was more detailed information. These include
specific information on lung cancer (regular therapy, diagnostics, and
disease symptoms), verification of what the doctor has said, diagnosis,
and prognosis. Most of the requested information could have been
obtained from treating specialists, indicating that current information
supply to lung cancer patients and their caregivers may not be matching
their needs sufficiently. The further implementation of an online
dialogue with lung cancer specialists might be a solution.